WASHINGTON — Public health advocates and farmworkers called for a federal ban on a toxic herbicide they say led to their Parkinson’s disease during a Tuesday briefing for congressional staffers.

The U.S. Environmental Protection Agency will determine next year if the herbicide, paraquat dichloride, should have its license renewed for another 15 years. The herbicide is used for controlling weeds in agriculture settings. It’s currently banned in more than 70 countries and has several serious health conditions it’s linked to, such as cancer and increases the likelihood of developing Parkinson’s disease.

Nora Jackson, a former farmworker of Indiana, said that her cousin, whose job it was to spray paraquat on farms, developed Parkinson’s at 55 years old. Signs of Parkinson’s usually appear around 60 years old.

“Farmworkers often have to do extremely risky jobs … but it doesn’t have to be that way,” Jackson said. “It is possible to have an agriculture system that does not depend so heavily on paraquat and it does not have to be a pesticide that puts so many people’s lives at risk.”

The disease has drastically affected his life, Jackson added.

“He now relies heavily on medication and uses a walking stick to be able to walk every day,” she said.

The briefing on the health risks of paraquat was hosted by the Michael J. Fox Foundation for Parkinson’s Research, Alianza Nacional de Campesinas, which is an alliance for farmworker women, and the Environmental Working Group, a nonprofit that produces research and advocates for public health.

The Michael J. Fox Foundation for Parkinson’s Research was established by the actor who starred in blockbusters Back to the Future, Doc Hollywood and Teen Wolf. Fox was diagnosed with early onset Parkinson’s at the age of 29.

Ban necessary

The EPA has until Jan. 17 to make a decision on paraquat’s future availability.

Advocates at Tuesday’s event called for the agency to deny paraquat’s license renewal, saying other regulations to reduce exposure to the herbicide have come up short.

“Keep in mind that people have been using this chemical as directed, and are still developing Parkinson’s disease,” Scott Faber, Environmental Working Group’s senior vice president of government affairs, said. “So putting more restrictions on how it’s used, when it’s used, what equipment you use, and so on, is not the answer.”

Parkinson’s disease affects the nervous system and causes unintended shakiness, trouble with balance and stiffness. There is no cure.

The California Legislature is moving to ban the herbicide. 

David Jilbert, of Valley City, Ohio, a former farmworker with a background in engineering, was diagnosed with Parkinson’s in 2021.

“As a longtime environmental engineer, I understood the importance of personal protection equipment, and I particularly followed all safety protocols,” he said.

He sold his vineyard in 2019 because he wasn’t feeling well and his hands were beginning to move slowly.

“My diagnosis changed everything, affecting every aspect of my life, from physical capabilities to emotional wellbeing, financial stability,” he said. “There is no cure for Parkinson’s. It is degenerative and it will only get worse, not better.”

Charlene Tenbrink of Winters, California, was diagnosed with Parkinson’s in 2020. She worked on her family farm from 1993 to 2000 where she would mix, load and spray paraquat.

Tenbrink said she felt let down by the federal government because she was unaware of the health risks that paraquat could pose.

“We’ve been trying to change this,” she said, “for a long time.”